Now for the darkness:( While in Ukraine, some of you will remember that our sweet Chloe Bea was having some trouble keeping her blood counts where they belong. In the weeks since we've home she has been closely monitored by an amazing team of Oncology Doctors. Poor baby girl had a bone marrow biopsy a few weeks ago and the results were not what we had prayed for. She has been diagnosed with MDS which is a form of blood cancer that is evolving into AML (Leukemia). Children with Down syndrome are predisposed to Leukemia and thankfully, Chloe's incredible Dr has always payed close attention to detail when it comes to our princess. We can honestly say that she is responsible for saving Chloe's life! Catching this disease in it's early stages is key and it is why Chloe will have better than a fighting chance... She's a rockstar and will blow us all away with her strength through the next year! Let's hope that Mom and Dad can be half as brave:)
Several blog posts ago, early on in our journey to Olivia, I talked about our Village. I can tell you, our Village has heard our devastating news and has gone into full swing! Prayer chains are connecting around the country, meal plans are being set up, family is making travel plans and even Leukemia walks are in the works! Lee and I are in awe and once again realizing how amazingly blessed we are.
Chloe is scheduled for another biopsy on July 5th and will start Chemotherapy soon after. We will be spending much of the next 6 months in the hospital. She will get to come home after each treatment only if her blood counts are perfect. There is concern with infection during the days after Chemo because her little body will have no immunity and with all of children at home there is a huge risk.
We are asking you all to storm the heavens with prayers for our beautiful girl.. We are going to put this all behind us for the next few weeks and enjoy our summer with our family. We have a lake vacation planned and Chloe's Doctors encouraged us to not cancel.. So we will happily go and you bet we will cherish every moment and not take one ounce of this precious life for granted...
Thank you for you continued prayers, support and love. Now enjoy some pictures of our Angel Girl:
Love to you all.....
- Posted using BlogPress from my iPad
Sweet sweet girl! Praying hard for her, and you! We are here for anything you need. Love you all!
ReplyDeleteYou, Lee, Chloe, Olivia... EVERYONE in your family has an amazing group of people enveloping you in love. Take people up on the offers for help :) Chloe is going to rock this out. Love you, Sister. xoxoxoxoxoxo
ReplyDeleteYou will be in my prayers!! Big hugs to your whole family.
ReplyDeleteWe love you guys and are praying!!
ReplyDeleteJust found your blog through a link from my friend Karly--and I am in tears! Love your heart for Jesus, your beautiful family... and goodness gracious is that ever a beautiful little girl! I am joining the many "storming the heavens with prayers" for your daughter. Lifting you up. My littlest (right now) has DS and has changed our lives. We are hoping to adopt another child with DS after our new babe is born... praying. tearful. powerful. blessings to you.
ReplyDeleteThinking of and praying for all of you. Not sure what blessing God has for you in this trial, but know He is holding all of you snuggly in His arms! Love to all of you!!!
ReplyDeleteBlessings and prayers for your family~
ReplyDeleteOh Father God, hear our prayers for perfect blood counts as Chloe begins her treatment for cancer. We believe you are the Great Physician and will be in total control of her care. Please send a peace beyond comprehention for Chloe and her parents. Please prepare Olivia's heart so that her adjustment into her family will be easy even if they are not all together during the treatments. We ask all of this in your precious Holy name!
ReplyDeleteAmen.
Oh my goodness. I cannot imagine how hard it must have been to hear that news... So glad to know (and that YOU know) that your princess is in the hands of the mighty One. Creator. Healer. Love. Glad to be a prayer warrior for Chloe, storming heaven! It sounds like you have a lot of support, but if there is anything I can do, I'd love to! God bless you all.
ReplyDeleteOh my goodness Beth, I'm so sorry about Chloe's diagnosis! I will be praying like crazy! She's obviously a trooper, I love the pic of her on the exam table and with her sister in the stroller! She will do great and kick this @*#% cancer in the rear!! Prayers and hugs!
ReplyDeleteChristina Schye
Keeping all of you in my prayers.
ReplyDeleteOh Beth, I was not expecting to find this news when I clicked on your blog today. I will be praying for you and Chloe. Thank God for your wonderful family, friends and support system.
ReplyDeleteSue H.
Joining with all the prayer warriors storming the gates of Heaven believing and knowing that our Almighty Father hears and answers every prayer and confident of His faithfulness, compassion, loving kindness, protection and healing on Chloe and your entire family as you begin another journey with Our Lord Jesus holding you all in the palm of His hand very step of the way.
ReplyDeleteyou all are in my prayers
ReplyDeleteI have followed your blog for quite a while and have loved seeing your journey unfold. I am so sorry to hear of your sweet little Chloe's diagnosis. I wanted to tell you about my friend Kim who has identical twin daughters with Down Syndrome and both are going through treatments for AML. I am sure that she would love to talk with you and answer any questions you might have. Here is a link to her blog and a video of the girls. http://www.ourlittlesilverlining.blogspot.com/2012/05/video.html
ReplyDeletemy email address is mandihamisch@hotmail.com if you would like me to give you her contact information.
So sorry that you all and Chloe have to deal with this, but I know you will with grace. You seem to have a wonderful support system there!
ReplyDelete